Prevalence of Hypoplastic Left Heart Syndrome per 10,000 Live Births Metadata
- metadata
- idinfo
- citation
- citeinfo
- origin: New Mexico EPHTN Project Manager
- pubdate: 20210914
- title: Prevalence of Hypoplastic Left Heart Syndrome per 10,000 Live Births
- onlink
- descript
- abstract: This data set supports calculation of the frequency ("prevalence") of infants born with birth defect, which is hypoplastic left heart syndrome per number of live births among New Mexico residents. Prevalence of hypoplastic left heart syndrome is the number of live-born infants with hypoplastic left heart syndrome per 10,000 live-born infants. The prevalence of hypoplastic left heart syndrome per 10,000 live births measure is presented by county, for 2015-2019.
- purpose: Dataset was created to provide data for the New Mexico Environmental Public Health Tracking Network in order to monitor spatial and temporal variation in the annual prevalence of hypoplastic left heart syndrome, one of the major birth defects consistent with Nationally Consistent Data and Measures (NCDMs).
- supplinf: The data are from the New Mexico Birth Defects and Surveillance System (NM BDPASS). In January 2000 birth defects became a reportable condition; however, birth defects were collected prior to this date. The first year of consistent data is 1998. However, data for hypoplastic left heart syndrome were not collected consistently until 2004. The most recent year of analyzed data is 2019. Data are collected on births occurring in-state to NM residents. We do not currently receive births for NM residents which occur out of state. NM BDPASS collects birth defect data among live births as well as fetal losses, which include stillbirths, spontaneous abortions and elective terminations occurring at all gestational ages. Birth defect cases are ascertained up to age 4; however, the majority of diagnoses are made by age 1. Surveillance methods include a combination of active and passive case ascertainment. Case finding/identification occurs through review of birth and death certificates, hospital discharge diagnoses, records from pediatric specialists and prenatal diagnostic providers.
The following International Classification of Diseases, 9th and 10th Revisions Clinical Modification (ICD-9-CM and ICD-10-CM) codes were used in 2015 to identify HLHS: 746.7 and Q23.4, respectively. Only ICD-10-CM code was used from 2016-2019.
In 1987, CDC put forth a set of 6-digit codes (the sixth digit provides greater specificity for diagnosis) based on the British Pediatric Association Classification of Diseases and the ICD-9-CM. If CDC/BPA codes are present, the following were used to identify HLHS: 746.70.
- timeperd
- timeinfo
- rngdates
- begdate: 20150101
- begtime
- enddate: 20191231
- endtime
- current: Publication Date
- status
- progress: Complete
- update: Annually
- spdom
- bounding
- westbc: -109.05017700000001
- eastbc: -103.00206900000001
- northbc: 37.000292999999999
- southbc: 31.332173999999998
- keywords
- theme
- themekt: ICD-9-CM
- themekey: 746.70
- themekey
- theme
- themekt: ICD-10-CM
- themekey: Q23.4
- themekey
- theme
- themekt: PH_PublicHealthCaseRecordType_CDC
- themekey: birth defect, hypoplastic left heart syndrome
- place
- placekt: FIPS 5-2 (State)
- placekey: New Mexico, NM, 35
- accconst: Restricted (secure) data will only be released to external users after the New Mexico EPHT Program distributor responsible for management data requests has reviewed the request. The request must include the requestor's name, affiliation, contact information, intended use of the data and whether the use of the data is intended to result in publication. Specific data elements requested must also be included.
- useconst: This information is provided by the Environmental Health Epidemiology Bureau, Epidemiology and Response Division and the Children's Medical Services Program, Public Health Division of the New Mexico Department of Health. Efforts have been made to assure the accuracy of the data; however, no responsibility is assumed by the NM Department of Health related to materials or how it is represented by those who access this information. Data requests that would provide cell counts under 5 will not be permitted as this would violate minimum requirements for confidentiality and privacy. All users must read and fully comprehend metadata prior to data use. Data may only be used in the manner specified in the data request.
- ptcontac
- cntinfo
- cntperp
- cntper: New Mexico EPHTN Project Manager
- cntorg: New Mexico Department of Health, Environmental Health Epidemiology Bureau
- cntpos
- cntaddr
- addrtype: Physical
- address: 1190 St. Francis Drive
- city: Santa Fe
- state: NM
- postal: 87505
- country: United States Of America
- cntvoice: 18888788992
- cntvoice
- cnttdd
- cntfax: 5058270013
- cntemail: DOH-EHEB@state.nm.us
- hours: 8:00 - 5:00
- cntinst
- secinfo
- secsys: None
- secclass: Restricted
- sechandl: Restricted data released to an external partner may not be disseminated or distributed in a manner that violates New Mexico Department of Health privacy/confidentiality policies.
- native: SASServer9.1.3
- dataqual
- logic: NA
- complete: NA
- lineage
- procstep
- procdesc: Dataset developed per the instructions found in the Centers for Disease Control and Prevention Recommendations for Nationally Consistent Data and Measures within the Environmental Public Health Tracking Network, version 1.3, (http://ephtracking.cdc.gov/docs/CDC_NCDM_Pt1_1.3.pdf).
- procdate: 20160203
- procstep
- procdesc: NM EPHT data queries through nmtracking.org (NMTracking) result in
query-specific data sets that are aggregated by geographic unit. These
aggregated data are dynamically joined to boundary data sets for display
in the NMTracking interactive map. Boundaries are for County, Census
Tract, and Small Areas and are created using U.S. Census 2010 boundary
data.
The Small Areas data set consists of combined Census tracts and was
developed at the NM Department of Health. New Mexico Small Areas are 109
geographic areas across the state with population size that is just
large enough to calculate rates for selected health events (e.g., asthma
mortality, female breast cancer incidence). Most (95%) New Mexico
small-area population sizes range from 9,000 to 30,000 persons. Some
counties have multiple small areas (e.g., Bernalillo County has 34 small
areas within its boundaries). In other cases, whole counties (e.g.,
Harding, Quay, and DeBaca) are combined to create a single small area.
Please note that some data queries and displays might be available only
to those with restricted-access permissions.
Mapped results for the interactive data query include options for a
background with an NM base map or shaded relief. Both background maps
are served from the NM Resource Geographic Information System (NM RGIS,
rgis.unm.edu) or other servers hosted at UNM Earth Data Analysis Center.
- procdate: 20170920
- eainfo
- overview
- eaover: These data contain the following fields: BirthDefect, Countycode, MaternalAgeGroup, InfantSex, TLB (total live births), LBWBD (live births with defects). Case counts are aggregated according to birth defect by year of surveillance (e.g. birth year), county, maternal age group and sex of infant.
- eadetcit: The variable BirthDefect is a number which represents hypoplastic left heart syndrome;
Countycode: County fips code over which birth defect cases and underlying birth populations are counted. Begins with state code of 35;
MaternalAgeGroup: Five-year material age intervals for which cases and underlying birth populations are counted: less than 20 years; 20-24 years; 35-29; 30-34; 35-39; greater than 40;
InfantSex: Infant sex for which cases and underlying birth populations are counted.: M=Male; F=Female; U=Unknown;
TLB: Total number of live births;
LBWBD: Number of cases of birth defect among live births.
- distinfo
- distrib
- cntinfo
- cntperp
- cntper: New Mexico EPHTN Project Manager
- cntorg: New Mexico Department of Health, Environmental Health Epidemiology Bureau
- cntpos
- cntaddr
- addrtype: Physical
- address: 1190 St. Francis Drive
- city: Santa Fe
- state: NM
- postal: 87505
- country: United States Of America
- cntvoice: 18888788992
- cntvoice
- cnttdd
- cntfax: 5058270013
- cntemail: DOH-EHEB@state.nm.us
- hours: 8:00 - 5:00
- cntinst
- resdesc: New Mexico Birth Defects and Surveillance System (NM BDPASS.
File: birthdefects04_07.sas7bdat
- distliab: Persons or entities given access to restricted data are liable for compliance with the New Mexico Department of Health data use agreement. Disciplinary action will be incurred for non-compliance or violation of data use agreement.
- custom: For access to unrestricted or public use data, please see: https://nmtracking.org or http://ephtracking.cdc.gov/ for national and multistate data;
For access to restricted or secure New Mexico data please contact doh-eheb@state.nm.us
- metainfo
- metd: 20210914
- metc
- cntinfo
- cntperp
- cntper: New Mexico EPHTN Project Manager
- cntorg: New Mexico Department of Health, Environmental Health Epidemiology Bureau
- cntpos
- cntaddr
- addrtype: Physical
- address: 1190 St. Francis Drive
- city: Santa Fe
- state: NM
- postal: 87505
- country: United States Of America
- cntvoice: 18888788992
- cntvoice
- cnttdd
- cntfax: 5058270013
- cntemail: DOH-EHEB@state.nm.us
- hours: 8:00 - 5:00
- cntinst
- metstdn: EPHTN Tracking Network Profile Version 3.0
- metac: None
- metuc: None
